Northern Lights of Headache Nursing: Reflections from IFHN Oslo 2026

Like the Northern Lights, the International Forum for Headache Nurses (IFHN) annual meeting in Oslo brought together different colours, voices and experiences from across the world. Held at Domus Medica, Oslo, Norway, the meeting gathered members and  colleagues from ten countries including Norway, the UK, Ireland, Denmark, the Netherlands, Japan, Spain, Belgium, Sweden and Estonia.

There was something very fitting about meeting in Norway, a country known for its beautiful fjords… deep, connected and shaped over time. In many ways, the meeting felt the same. Over two days, we created beautiful connections, shared experiences from different healthcare systems, and strengthened the bonds within our growing international headache nursing community. It was not just a meeting filled with excellent lectures and workshops. It was a space where people came together with warmth, openness and a shared purpose. There was a real sense that, although we all came from different countries and different services, we were connected by the same commitment: to improve the lives of people living with headache disorders.

The meeting opened with the first session, delivered by Prof Anne Hege Aamodt and Dr Burcu Bezgal, focused on treatment options in chronic migraine. It was a great way to begin the programme, giving us an overview of where we are now with treatment and how much the field has moved forward. It also reminded us that chronic migraine remains complex, and that treatment is never just about prescribing, it is about listening to patients, understanding their burden and supporting them through what can often be a long and difficult journey.

This was followed by Dr Maria Argren’s session on medication-overuse headache, with the very fitting title When Treatment Becomes the Trigger. This was such an important topic for headache nurses, as we are often the ones having those careful and sometimes difficult conversations with patients. The session highlighted the importance of education, trust and supporting patients without making them feel blamed for trying to manage their pain.

The session on Digital Home Follow-up for Headache, presented by Dr Bendik Slagvold Winsvold and Ingrid Antoinette Ter Woerds Christensen, gave the attendees a really interesting look at how digital tools can support headache care. It was encouraging to see how technology can help patients feel more connected and monitored, especially between appointments. It also opened up good discussion about how we can use digital follow-up in a way that supports, rather than replaces, the human side of care.

After lunch, Dr Kjersti Vetvik and Inger Louise Hole spoke about multidisciplinary headache treatment and helping patients return to work. This session really stood out because it focused on function, confidence and quality of life. As headache nurses, we know that headache disorders affect so much more than pain scores. They affect work, family life, confidence and identity. This session reminded us how important it is to look at the whole person and to work together as a multidisciplinary team.

Dr Kjersti Vetvik then delivered a very useful session on women’s health and migraine, asking the important question: what do hormones have to do with it? This was a really relevant and practical session, covering an area that many patients ask about in clinic. It highlighted the need for us to be confident in talking about menstrual migraine, pregnancy, perimenopause and menopause, and to make sure women feel heard and supported at every stage.

One of the lovely parts of the programme was the session on headache care in different countries, with presentations from the UK, the Netherlands and Norway. It was fascinating to hear how services are organised in different systems and also reassuring to realise that many of the challenges we face are shared. It was a great reminder that there is so much we can learn from each other, and that international collaboration can help us think differently about our own services.

The IFHN update from the President, Jennifer Trouerbach, gave us time to reflect on the progress of the forum and where we go next. It was lovely to hear about collaboration, next steps and the continued growth of IFHN. This really captured the heart of the forum: nurses supporting nurses, sharing expertise and building something meaningful together.

The afternoon continued with Dr Aud Nome Dueland’s session on cluster headache and TACs, which was a very clear and practical reminder of how to differentiate between the primary headache types. This was followed by the session on health literacy, delivered by Dr Aud Nome Dueland and Kristina Galåen Kuhlefelt. This was another important topic, because even the best treatment plan will not work if patients do not understand it or feel confident following it. It reminded us that empowering patients starts with communication that is clear, kind and accessible.

The day ended with dinner at Olivia Aker Brygge, which was such a lovely part of the meeting. The dinner gave everyone a chance to continue conversations in a more relaxed setting, to get to know each other properly and to share experiences from different countries. These informal moments are so important. They are where ideas are exchanged, friendships are formed and future collaborations often begin. It was a beautiful reminder that professional communities are built not only in lecture rooms, but also around the dinner table.

The second day focused on communication in healthcare, which felt very fitting for headache nursing. Professor Emerita Hilde Eide opened the day by sharing what the research shows about communication and why it matters. It was a powerful reminder that communication is not a soft skill but rather a clinical skill. The way we listen, explain and respond can make such a difference to how patients feel and how they engage with their care.

The session on The Four Habits Model, led by Dr Jørgen Sandberg Michelsen and Anna Stella von Malchus Kyed Johnsen, was practical and engaging. It gave us a useful structure for thinking about how we communicate with patients, especially in busy clinical settings. The workshops and case discussions that followed allowed us to reflect on real situations and practise skills that we can take back into our own clinical practice.

The meeting closed with a real sense of warmth and shared purpose. It was clear that everyone left Oslo with new learning, new connections and renewed motivation to continue developing headache nursing in their own countries.

A heartfelt thank you goes to Prof Anne Hege Aamodt, who was instrumental in making this meeting happen. Her leadership, generosity and commitment helped create a meeting that was not only educational, but also welcoming and inspiring.

As Prof Anne Hege said “It was a pleasure to welcome such an outstanding group of colleagues, and I am grateful for the time and effort you invested in making the meeting a success. The feedback from participants has been overwhelmingly positive, and your contributions played an important role in making the meeting both educational and inspiring. The meeting also provided a valuable opportunity to strengthen international collaborations and further develop the headache nursing community.” A special thank you also goes to Kristine Jacobsen, who served as Co-Chair of IFHN 2026. Kristine’s dedication, enthusiasm and tireless work throughout the planning and delivery of the meeting were instrumental to its success. Her warmth and attention to detail helped make everyone feel welcomed, and it was clear how much care went into making the meeting such a success.

As we look back on Oslo with so much gratitude, there is also something exciting to look forward to  the next IFHN meeting in Dublin, Ireland. The journey continues beautifully, from the Northern Lights and fjords of Norway to the River Liffey of Dublin. Different places, different stories, but the same shared purpose: bringing headache nurses together to learn, connect and continue building this special international community.

IFHN Session Summary

19th European Headache Congress (EHC), Lisbon, Portugal.

The International Forum of Headache Nurses (IFHN) held an educational symposium at the 19th European Headache Congress (EHC) in Lisbon in December 2025. The Forum session was attended by approximately 100 delegates and was chaired by Headache/Migraine specialist nurse, Esther Tomkins (Beaumont Hospital, Dublin, Ireland). There were three invited headache nurse specialists and their presentations highlighted key areas surrounding migraine stigma. 

IFHN Co-founder and outgoing President, Ms. Annette Rasmussen (Headache specialist nurse, University Hospital Zealand, Roskilde, Denmark) opened the session and spoke briefly about the history of IFHN before announcing the transfer of the presidency Ms Jennifer Trouerbach, (Headache specialist nurse, Leiden Headache Centre, Netherlands). Annette will remain on the Board and will continue as an active member of the IFHN.

The first speaker, Ms. Judeia Lyka Pacana (Headache/Migraine specialist nurse, University College London Hospitals, Queen Square, London, UK), discussed the stigma of migraine in the wider community and the common misconceptions of people in general and also healthcare professionals. She pointed out that migraine is still underdiagnosed, misdiagnosed, and undertreated. Her talk also highlighted the fact that migraine is a biological condition with virtually no biomarkers. It is not just a bad headache that only affects women. One key point is that migraine should not be oversimplified as it is a complex neurological disorder with multiple clinical features and a wide array of presentations. Migraine patients are often not straightforward in terms of diagnosis and management. In addition, there is significant burden and disability associated with more chronic migraine including sleep disturbance, anxiety and depression.

Ms. Eulalia Gine Cipres (Headache/Migraine specialist nurse, Vall d’Hebron Hospital and Research Institute, Barcelona, Spain) then addressed the fact that headache specialist nurses are not recognised enough for their role. This was a talk addressing professional stigma and the correlation with patient stigma. She spoke passionately about how many patients with migraine feel misunderstood, judged or invisible when living with migraine. She then focused on how some nurses feel undervalued in their headache roles and can feel ignored or excluded professionally. Migraine may be stigmatised by colleagues as an unimportant medical or neurological condition. Some of the main deficiency areas highlighted were lack of education, lack of specialised training, lack of formal recognition of headache nursing practice and more importantly lack of awareness of the scope of headache nursing practice. This has been demonstrated by the lack of awareness of expanded specialist and advance practice roles within Headache Medicine.

The last speaker was Maren Ostergaard Eriksen, (Headache/Migraine specialist nurse, Hemi Klinikken, Frederiksberg, Denmark) and she addressed the stigma of living with migraine. She discussed the results of the recent European Headache and Migraine Alliance (EHMA) study: “Migraine stigma and general knowledge of migraine: A cross-sectional European Survey” (Goadsby et al, Cephalalgia, 45, 9, 2025). It reported that 53% of patients felt the disease was not well understood, 40% felt that it was not understood at all and 57% felt medical professionals only partially understood. Maren also highlighted ways to combat stigma including both patient and health professional education, public awareness campaigns, more financial resources for Headache Medicine units and patient advocacy.

A interactive and informative question and answer session followed the three presentations, and the session closed noting the next IFHN two-day educational session to be held in person in Oslo, Norway, May 28-29, 2026.

IFHN would like to thank EHF president, Prof. Antoinette Massen van den Brink and the European Headache Federation for inviting us to present at the meeting in Lisbon. It was a very rewarding and valuable experience for all involved.

IFHN’s International Headache Nurses Meeting 2025 goes to London

The grand halls of the Royal College of Physicians in London buzzed with anticipation as healthcare professionals from around the world gathered for a truly historic event — the International Headache Nurses Meeting 2025.

For the first time, the International Forum for Headache Nurses (IFHN), in collaboration with the Headache Academy, brought this global meeting to London — a fitting setting for a celebration of learning, collaboration, and professional pride.

Ninety-two delegates filled the venue, representing an impressive array of countries — from Japan and Australia to Spain, the Netherlands, Norway, Ireland, and across the United Kingdom. The audience was as diverse as it was passionate, with headache nurses, pharmacists, physiotherapists, chiropractors, and psychologists all united by one shared mission: to improve the lives of people living with headache and facial pain.

The meeting began with a warm welcome from Professor Manjit Matharu, a world-renowned neurologist and leading figure in headache medicine, alongside Susie Lagrata, IFHN Board Member and Advanced Headache Nurse Practitioner.

Standing before a packed auditorium, Professor Matharu captured the spirit of the day with his heartfelt words: “Today, we celebrate the people who keep headache services moving, the nurses and allied health professionals who form the backbone of care. You are the ones who ensure access, continuity, and outcomes from triage to advanced therapeutics. You innovate through nurse-led clinics, you educate and advocate… empowering patients, upskilling teams, and shaping policy. You measure and improve through audit, research, and service redesign, creating impact at scale. With global reach and local excellence, your contribution is recognised and deeply appreciated worldwide. Your expertise is defining the future of headache care.”

His address set a tone of gratitude and empowerment — a reminder of just how far the field of headache nursing has come and how vital it continues to be. Following the opening remarks and a warm address from IFHN board members Susie, Gøril Bruvik Gravdahl and Jennifer Trouerbach.

The morning sessions began each one a showcase of expertise, empathy, and innovation. Siobhan Jones, Consultant Nurse in Headache, opened the first session with “Breaking the Stigma: Changing Perceptions of Migraine.” Her talk invited the audience to challenge misconceptions surrounding migraine and to reframe it as a serious neurological condition deserving of compassion, attention, and proactive management. Her message resonated deeply: that education and empathy are as crucial as treatment itself.

Next, Ajay Boodhoo, Neurology Nurse Consultant, delivered “Mastering Headache Assessment: A Nursing Perspective.” His session combined clinical wisdom with practical strategies, guiding delegates through the subtleties of assessment — listening, observing, and understanding the patient’s journey beyond symptoms.

Then, Susie Lagrata returned to the podium with a powerful and clinically grounded session on “Medication Overuse Headache (MOH): Best Practices in Management & Care.” Drawing on evidence-based guidelines and her extensive experience, she explored the complex nature of MOH and the importance of combining empathy with structured intervention. Susie explained that effective management rests on three essential pillars: education and counselling, withdrawal of the overused medication, and addressing the underlying primary headache disorder through preventive treatment. She highlighted how these approaches, when delivered through compassionate and multidisciplinary care, lead not only to symptom relief but also to long-term recovery and patient empowerment. Delegates left her session with renewed confidence and practical strategies they could immediately apply in their clinics.

After a lively coffee break and networking session, delegates were treated to a heartwarming and insightful presentation from Jo Mortimer and Kate Crumpler on “Bridging the Gap: The Role of Transition Clinics in Headache Care.” They shared stories of collaboration between paediatric and adult services, highlighting how continuity of care can change lives for young people navigating chronic headache conditions.

Closing the morning programme, Camille Milante explored one of the most delicate topics in headache care  “Managing Migraine in Pregnancy.” Her compassionate discussion offered practical guidance on balancing maternal safety, foetal health, and symptom relief during such a sensitive period, leaving attendees with both clinical pearls and a renewed sense of empathy.

After a refreshing lunch and more networking among colleagues and new friends, the afternoon programme dove into advanced and complex clinical topics. Angela Stockley opened with “Beyond Migraine: Recognising and Managing Comorbidities.” Her talk reminded everyone that no patient exists in isolation. Mental health, sleep disorders, and hormonal influences often intertwine with headache presentations. Her emphasis on holistic care was met with nods of agreement throughout the room.

Next came Bethany Hill, who tackled the challenging topic of “Refractory Headaches: When Standard Treatments Fall Short.” With poise and clinical insight, she guided attendees through evidence based and practical management strategies and the emotional dimensions of caring for patients whose pain persists despite best efforts.

Rachel Pickering followed with a fascinating session on “Advancements in Non-Invasive Neuromodulation for Headache Relief.” Demonstrating the latest in device-based therapy, Rachel sparked enthusiasm for how technology continues to evolve in supporting patient-centred care.

The day concluded with vibrant interactive workshops, allowing delegates to turn theory into practice in a dynamic learning environment. At Station 1, Maha Ahmed and Dominique Penaflor led Injection Training for Headache Management, giving participants the opportunity to refine their technique under expert guidance. At Station 2, Lyka Pacana and Rachel Pickering focused on Hands-On Non-Invasive Devices, letting attendees trial and discuss emerging neuromodulation technologies. Meanwhile, at Station 3, Susie Lagrata and Antoinette Lagrata facilitated Case-Based Learning: Real-World Scenarios in Headache Care, where participants explored challenging cases and shared insights from their own practice.

The room was alive with curiosity, conversation, and collaboration the perfect culmination of a day dedicated to education and exchange. Throughout the event, delegates repeatedly expressed how valuable the programme had been rich in learning, practical in focus, and generous in spirit. Many described leaving with new knowledge they could immediately apply in their clinics, and new friendships that would continue beyond the meeting halls.

The success of this historic event would not have been possible without the exceptional generosity of Professor Manjit Matharu, whose support allowed the conference to be offered completely free of charge, including complimentary accommodation for all delegates. His commitment to advancing headache care and empowering the nursing community was evident in every detail of the day.

Special thanks were also extended to Susie Lagrata, lead organiser, event chair and IFHN Board Member, and to the Headache and Facial Pain Service headache nursing team at the National Hospital for Neurology and Neurosurgery, University College London Hospitals NHS Foundation Trust, whose hard work, dedication, and vision brought the event to life.

As the day drew to a close, the air was filled with both pride and possibility. The 2025 IFHN’s International Headache Nurses Meeting was more than a conference, it was a celebration of the profession, a gathering of minds, and a reminder that collaboration across borders can move mountains in patient care.

In the words of one delegate, “It wasn’t just about learning, it was about belonging. We left inspired, connected, and ready to make a difference.”

With hearts full and minds inspired, the community now looks forward to next year’s meeting in Oslo, Norway — a new chapter in the journey of connection, growth, and innovation. If London marked a historic milestone, Oslo promises to carry the torch even higher, uniting professionals once again in the shared pursuit of excellence in headache care.

Upcoming Event: International Forum for Headache Nurses at the European Headache Congress

We are excited to announce a dedicated programme for the International Forum for Headache Nurses at the European Headache Congress in Rotterdam, Netherlands!

Date: December 6, 2024  9 am to 10.30 am session

Location: Rotterdam, Netherlands, European Headache Congress

Our topics includes the following:

• Consensus Recommendations on the Role of Nurses in Headache Care

A key session will feature the presentation of consensus recommendations from a North and Central European e-Delphi study. These recommendations outline the critical role that nurses play in headache care, establishing a framework for our practice and expanding our impact in patient outcomes.

• Enhancing Headache Daycare Through Audit and Quality Improvement Strategies

Discussion on methods for improving headache daycare through targeted audit and quality improvement initiatives in our headache clinics. This session will focus on practical tools and strategies to enhance the quality of care for headache patients.

• Continuity of Care in Changing Times: Research in Nursing Practice

Explore recent research on continuity of care within the evolving field of headache nursing. This session will cover innovative approaches to maintaining seamless patient care as healthcare environments and nursing practices adapt to meet new challenges. This event is a valuable opportunity for all headache nurses to connect, learn, and contribute to the growth of our field. It is also a great platform to network, reconnect, and catch up with colleagues. We are excited to see everyone in Rotterdam and look forward to inspiring gathering and strengthening our community.