IFHN’s International Headache Nurses Meeting 2025 goes to London

The grand halls of the Royal College of Physicians in London buzzed with anticipation as healthcare professionals from around the world gathered for a truly historic event — the International Headache Nurses Meeting 2025.

For the first time, the International Forum for Headache Nurses (IFHN), in collaboration with the Headache Academy, brought this global meeting to London — a fitting setting for a celebration of learning, collaboration, and professional pride.

Ninety-two delegates filled the venue, representing an impressive array of countries — from Japan and Australia to Spain, the Netherlands, Norway, Ireland, and across the United Kingdom. The audience was as diverse as it was passionate, with headache nurses, pharmacists, physiotherapists, chiropractors, and psychologists all united by one shared mission: to improve the lives of people living with headache and facial pain.

The meeting began with a warm welcome from Professor Manjit Matharu, a world-renowned neurologist and leading figure in headache medicine, alongside Susie Lagrata, IFHN Board Member and Advanced Headache Nurse Practitioner.

Standing before a packed auditorium, Professor Matharu captured the spirit of the day with his heartfelt words: “Today, we celebrate the people who keep headache services moving, the nurses and allied health professionals who form the backbone of care. You are the ones who ensure access, continuity, and outcomes from triage to advanced therapeutics. You innovate through nurse-led clinics, you educate and advocate… empowering patients, upskilling teams, and shaping policy. You measure and improve through audit, research, and service redesign, creating impact at scale. With global reach and local excellence, your contribution is recognised and deeply appreciated worldwide. Your expertise is defining the future of headache care.”

His address set a tone of gratitude and empowerment — a reminder of just how far the field of headache nursing has come and how vital it continues to be. Following the opening remarks and a warm address from IFHN board members Susie, Gøril Bruvik Gravdahl and Jennifer Trouerbach.

The morning sessions began each one a showcase of expertise, empathy, and innovation. Siobhan Jones, Consultant Nurse in Headache, opened the first session with “Breaking the Stigma: Changing Perceptions of Migraine.” Her talk invited the audience to challenge misconceptions surrounding migraine and to reframe it as a serious neurological condition deserving of compassion, attention, and proactive management. Her message resonated deeply: that education and empathy are as crucial as treatment itself.

Next, Ajay Boodhoo, Neurology Nurse Consultant, delivered “Mastering Headache Assessment: A Nursing Perspective.” His session combined clinical wisdom with practical strategies, guiding delegates through the subtleties of assessment — listening, observing, and understanding the patient’s journey beyond symptoms.

Then, Susie Lagrata returned to the podium with a powerful and clinically grounded session on “Medication Overuse Headache (MOH): Best Practices in Management & Care.” Drawing on evidence-based guidelines and her extensive experience, she explored the complex nature of MOH and the importance of combining empathy with structured intervention. Susie explained that effective management rests on three essential pillars: education and counselling, withdrawal of the overused medication, and addressing the underlying primary headache disorder through preventive treatment. She highlighted how these approaches, when delivered through compassionate and multidisciplinary care, lead not only to symptom relief but also to long-term recovery and patient empowerment. Delegates left her session with renewed confidence and practical strategies they could immediately apply in their clinics.

After a lively coffee break and networking session, delegates were treated to a heartwarming and insightful presentation from Jo Mortimer and Kate Crumpler on “Bridging the Gap: The Role of Transition Clinics in Headache Care.” They shared stories of collaboration between paediatric and adult services, highlighting how continuity of care can change lives for young people navigating chronic headache conditions.

Closing the morning programme, Camille Milante explored one of the most delicate topics in headache care  “Managing Migraine in Pregnancy.” Her compassionate discussion offered practical guidance on balancing maternal safety, foetal health, and symptom relief during such a sensitive period, leaving attendees with both clinical pearls and a renewed sense of empathy.

After a refreshing lunch and more networking among colleagues and new friends, the afternoon programme dove into advanced and complex clinical topics. Angela Stockley opened with “Beyond Migraine: Recognising and Managing Comorbidities.” Her talk reminded everyone that no patient exists in isolation. Mental health, sleep disorders, and hormonal influences often intertwine with headache presentations. Her emphasis on holistic care was met with nods of agreement throughout the room.

Next came Bethany Hill, who tackled the challenging topic of “Refractory Headaches: When Standard Treatments Fall Short.” With poise and clinical insight, she guided attendees through evidence based and practical management strategies and the emotional dimensions of caring for patients whose pain persists despite best efforts.

Rachel Pickering followed with a fascinating session on “Advancements in Non-Invasive Neuromodulation for Headache Relief.” Demonstrating the latest in device-based therapy, Rachel sparked enthusiasm for how technology continues to evolve in supporting patient-centred care.

The day concluded with vibrant interactive workshops, allowing delegates to turn theory into practice in a dynamic learning environment. At Station 1, Maha Ahmed and Dominique Penaflor led Injection Training for Headache Management, giving participants the opportunity to refine their technique under expert guidance. At Station 2, Lyka Pacana and Rachel Pickering focused on Hands-On Non-Invasive Devices, letting attendees trial and discuss emerging neuromodulation technologies. Meanwhile, at Station 3, Susie Lagrata and Antoinette Lagrata facilitated Case-Based Learning: Real-World Scenarios in Headache Care, where participants explored challenging cases and shared insights from their own practice.

The room was alive with curiosity, conversation, and collaboration the perfect culmination of a day dedicated to education and exchange. Throughout the event, delegates repeatedly expressed how valuable the programme had been rich in learning, practical in focus, and generous in spirit. Many described leaving with new knowledge they could immediately apply in their clinics, and new friendships that would continue beyond the meeting halls.

The success of this historic event would not have been possible without the exceptional generosity of Professor Manjit Matharu, whose support allowed the conference to be offered completely free of charge, including complimentary accommodation for all delegates. His commitment to advancing headache care and empowering the nursing community was evident in every detail of the day.

Special thanks were also extended to Susie Lagrata, lead organiser, event chair and IFHN Board Member, and to the Headache and Facial Pain Service headache nursing team at the National Hospital for Neurology and Neurosurgery, University College London Hospitals NHS Foundation Trust, whose hard work, dedication, and vision brought the event to life.

As the day drew to a close, the air was filled with both pride and possibility. The 2025 IFHN’s International Headache Nurses Meeting was more than a conference, it was a celebration of the profession, a gathering of minds, and a reminder that collaboration across borders can move mountains in patient care.

In the words of one delegate, “It wasn’t just about learning, it was about belonging. We left inspired, connected, and ready to make a difference.”

With hearts full and minds inspired, the community now looks forward to next year’s meeting in Oslo, Norway — a new chapter in the journey of connection, growth, and innovation. If London marked a historic milestone, Oslo promises to carry the torch even higher, uniting professionals once again in the shared pursuit of excellence in headache care.

IFHN shines at the 18th European Headache Congress

The International Forum for Headache Nurses’ (IFHN) session at the 18th European Headache Congress in Rotterdam, Netherlands, drawing more than 100 attendees, including nurses, allied health professionals (AHPs), and neurologists from the UK, Sweden, the Netherlands, Norway, Belgium, Spain, Ireland, Canada, and Denmark. Held on Friday morning from 9:00 to 10:30 am, the session showcased the vital role of headache nurses in advancing care and research while fostering meaningful discussions and collegiate connections.

Chaired by Jennifer Trouerbach-Kraan, the session opened with Jennifer welcoming attendees and introducing the IFHN. Reflecting on the forum’s journey across local and international platforms, she set an inspiring tone for the morning, highlighting the forum’s mission to unite headache nursing professionals worldwide.

The session featured three engaging speakers who shared their expertise and insights. First speaker was Louise Schlosser Mose from Denmark, who presented via a recorded video on her published work, Consensus Recommendations on the Role of Nurses in Headache Care: a north and central European e-delphi study. She provided a detailed overview of her study, discussing its methodology and its important findings. While acknowledging the diversity in nursing roles across different countries, Louise emphasised that her research aims to inspire further development of headache nurse’s framework tailored to local healthcare systems.

Maha Ahmed, a headache nurse specialist from the United Kingdom, followed with a presentation on Utilising Quality Improvement in Headache Care and Service Delivery. She emphasised the critical role of quality improvement in healthcare, offering practical tips for launching impactful projects. Through two compelling case studies, Maha demonstrated how quality improvement initiatives can enhance patient outcomes, improve experiences, and establish pioneering nurse-led services. She concluded with her team’s ongoing research comparing nurse-led and consultant-led Botox clinics, which generated significant interest among attendees.

The final speaker, Janneke de Man-van Ginkel from Netherlands, delivered a powerful talk on the Importance of Research in Nursing. She underscored the necessity of continuity of care in healthcare and highlighted how embedding research into nursing practice can drive innovation and ensure seamless patient care. Janneke’s presentation inspired attendees to see themselves as leaders in research within the evolving field of headache nursing.

The session concluded with a lively and interactive discussion, where attendees shared insights, asked thought-provoking questions, and explored how the lessons from the presentations could be applied to their own practices. This exchange of ideas reinforced the importance of networking and collaboration in advancing headache care and highlighted the power of collective efforts in overcoming challenges.

As the session ended, Chair Jennifer encouraged everyone to spread the word about the forum and invite others to join. “There is strength in numbers,” she reminded attendees, emphasising the importance of growing the forum’s community to amplify its impact and reach.

The IFHN session in Rotterdam was more than just an opportunity to share knowledge; it was a celebration of the dedication and expertise of headache nurses and allied health professionals worldwide. Attendees left inspired, connected, and ready to contribute to the ongoing growth of headache nursing. The IFHN extends its gratitude to the speakers, participants, and organisers who made this session a resounding success. Together, we are shaping the future of headache care—one step, one connection, and one innovation at a time.